Fortitude and patience. These are not qualities any four year old, including Rohan, posseses in great abundance. Yet fortitude and patience are exactly what I hope will be bestowed upon him now. In these few short weeks, I have puzzled over how he will get through the next few years without a strength of mind that many of us have never been required to have throughout our adult lives. I see him even now trying to summon his resolve when it is time to take his medications. He cries and says "you know I don't like it," but keeps his eye on the syringe the whole time. After what seems like an eternity, he points to it and signals that he'll have it now. In that moment I see a glimmer of the reserves of courage he already has to draw upon, and reminds me every time of a quote by Marcus Aurelius:
"Look well into thyself; there is a source of strength which will always
spring up if thou wilt always look there."
Patience on the other hand is a bit handicapped at the moment. The effects of the medications hinder the nurturing of an even-keeled manner. Besides, if he takes after me, he may always be a bit lacking in patience!
On a more clinical note, we've had some good news. Rohan is responding well to the chemo, and the doctors say we can be hopeful that he will be where he needs to be by the end of the month. Clearing even a little hurdle makes a difference. Also, we went to the hospital this morning to see if Rohan would need platelets or blood, and he didn't because his numbers are going up on their own. Not only was this good, but overall the whole trip was as pleasant as it could be for Rohan. He smiled and talked to the nurses and doctors. This was a first.
Tomorrow is Arya's first birthday, and we have yet to figure out how to make it special. Rohan says "Get a cake with ice-cream and cookies, and I'll give her that fire truck for her present." Who can argue with cookies, cake and ice-cream? A hand me down fire truck? Good thing she's too young to know or care!
The Prologue
Since Rohan cannot explain what is happening to him, I have decided to start this blog as way to translate to all of you how he is feeling and doing throughout his treatment for leukemia. I also want it to be a kind of record for Rohan when he is older and able to read. With that said, there may at times be postings that might not make sense to you but will make sense to him later.I hope this blog helps all of you who care about Rohan and us better understand the journey. I already know it will help me to have more clarity while I make this journey with him.
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3 comments:
I am very happy to see that Rohan is doing good. My Guru Dada JP Vaswani says that every sickness in the family brings blessings. Every well wisher of Rohan prays in his/her own way and becomes humble. Though Doctors are doing their best, but I believe that Prayers have their own power. Afterall the Big Daddy is the Best Doctor.
BK Nari
xoxo to all. I will do anything for you - any time - please ask if you need something. no task too menial. Renee.
Kathy & Manny Pardo said...
Our hopes and prayers are with you all. It's wonderful how brave Rohan is being. Hope Griffin's visit with him was super.
Regards Kathy & Manny
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