To start where I left off--last week's hospital visit went well. We were already ahead of the game because Rohan was not getting anasthesia last Wednesday so he didn't have to forgo breakfast! Not only was the visit shorter but some of his counts were going up on their own.
The weekend was exceptional (that is a relative term). First, Rohan took his medications without any qualms which made everything easier. Ravi and I didn't have to take a deep breath before approaching him with them. Second, my sister stayed home at night with the kids so Ravi andI could go to the movies. We finally saw the Batman movie. And lastly, the four of us went to a restaurant with outdoor seating and had a pleasant brunch. In some ways it was a taste of life the way it was only a few months ago.
I see that Rohan has begun to understand on some level that he is sick in a more serious way than when he gets a cold. The other day he asked, "When is my new school starting?" I took it as an opportunity to tell him that he wasn't going to be able to go to school for a while. We talked about how there are a lot of germs at school which could stop him from getting better. "That's fine. Right? I'll just go later," was his response. He has always been that way - positive and light-hearted.
Physically, Rohan is quite changed. His face has filled to the point where it looks as if it could burst if stretched anymore. He has a belly when three weeks ago all of his pants were too big around the waist. He and Ravi like to compare their bellies. I could probably join that contest, but what if I won?!
On that note, I'll end this here. Keep us in your prayers.
The Prologue
Since Rohan cannot explain what is happening to him, I have decided to start this blog as way to translate to all of you how he is feeling and doing throughout his treatment for leukemia. I also want it to be a kind of record for Rohan when he is older and able to read. With that said, there may at times be postings that might not make sense to you but will make sense to him later.I hope this blog helps all of you who care about Rohan and us better understand the journey. I already know it will help me to have more clarity while I make this journey with him.
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1 comment:
we are sending all of our positive thoughts and love to rohan! think of how unflappable he will be as an adult with this experience behind him.
Love, Naomi, Pei and Stuart
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