The Prologue

Since Rohan cannot explain what is happening to him, I have decided to start this blog as way to translate to all of you how he is feeling and doing throughout his treatment for leukemia. I also want it to be a kind of record for Rohan when he is older and able to read. With that said, there may at times be postings that might not make sense to you but will make sense to him later.I hope this blog helps all of you who care about Rohan and us better understand the journey. I already know it will help me to have more clarity while I make this journey with him.

Wednesday, August 20, 2008

"What should we have for lunch tomorrow?"

The day is one looong meal for Rohan: two bowls of cereal, dal & rice, tea & biscuits - all between 7 am and 9 am. Next, a "snack" of pepperjack cheese, crackers, a cookie and toast. Are we still going to have lunch? You bet because we have been discussing what we'll be eating for lunch since the day before. So at noon it's pasta with red sauce, chocolate milk and more cheese! Our conversation during lunch comprises of Rohan asking "What should we have for lunch tomorrow?" and "What should I have for snack after my nap?" Snack is freshly made pakoras with ketchup (these days ketchup goes with EVERYTHING), a peach yogurt and pita chips. There was yet one more snack before Rohan took part in Arya's dinner with the caveat that he was still going to have the Thai food that he had requested. "I think I am going to have two dinners today," said my little guy!!

All of this excitement about food is not a growth spurt but an effect of the medication. Though it feels like I am living in the kitchen, it is also quite amusing to hear him pontificate about food all day long. When he is not actually eating it, he is talking about it.

On another note, we have gone two days without Rohan crying when it is time to take medicine...hurrah!! With five medications twice a day, who could blame him for being upset. He set an example for Arya by being brave and taking all of his meds without tears. "See mommy I showed her how to be brave." It is in moments like that when I find myself hoping this ordeal doesn't change his punchy, witty and empathetic personality.

Hospital visit was good as well. Now we wait for the results of the bone-marrow aspiration. Keep your fingers crossed that the chemo is working.

2 comments:

Unknown said...

Rohan, you are an amazing kid and so are your parents and sister.

Please be well everyone,

Esti & Jean-Baptiste

Unknown said...

Rohan,
I'm coming to see you this weekend and talk about all the things you want to eat for a whole week! Arya is lucky to have such a brave big brother.

Love,
Sramana masi