We tried to make Arya's birthday celebration, as small as it was, look like it was something spectacular. After all, she will only be left with the pictures - which we front loaded with presents and balloons!! So even though she doesn't know it, her life has changed a bit. Though I'm sure Arya must know something has changed, particularly her brother. She tries to get him to play with her or chase her, but he is a bit too tired to deal with her. fortunately, she is too young to really understand. Otherwise, she is fine. She thinks she is something special because she can walk now.
I realized the other day that there has been a particularly significant shift for Ravi as well. As you all know, Rohan's been eating outrageous amounts of food. What you don't know is that most of his requests require some cooking. This usually means I am chained to the kitchen, however, there have been times that I have been out. During these times, Ravi has had to familiarize himself with kitchen basics. (You all know he can barely crack an egg!) Once, not able to find tomato sauce for Rohan's pasta - which he thought cooked in three minutes-he used salsa. Well, they're both red and have tomatoes. Luckily, Rohan liked it and has requested it again. The other day, I came home to be told that Rohan had soup but didn't finish it. Rohan complained that Daddy gave him too much soup. Turns out, that Ravi served the entire can of soup to our four year old!! When Ravi learned that you don't do that, he said,"You should buy half-cans of soup!" So, Ravi's trial by fire in the kitchen may turn out to be a good thing. He will learn that pasta takes a bit longer than three minutes; that it's okay to substitute (sometimes); and that soup does not come in half cans!
Overall, we're doing okay right now. Rohan was well over the weekend and goes to the hospital tomorrow for his weekly treatment. Hopefully, they tell us all is on track.
Signing off now to see my girl address the DNC.
The Prologue
Since Rohan cannot explain what is happening to him, I have decided to start this blog as way to translate to all of you how he is feeling and doing throughout his treatment for leukemia. I also want it to be a kind of record for Rohan when he is older and able to read. With that said, there may at times be postings that might not make sense to you but will make sense to him later.I hope this blog helps all of you who care about Rohan and us better understand the journey. I already know it will help me to have more clarity while I make this journey with him.
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Rohan
Today you are playing with your cars and showed some of the old Rohan that I am used to seeing. I am still waiting for the day you will want to play tennis, baseball and go swimming all in the same day, or even any of those on any day, and then somehow angle to get ice cream afterwards. Eventually you will be back to your oldself as that is the Rohan we know and love.
You also today (at least this morning) took your medecines without any trouble. I know you don't like them, but maybe you understand they will make you feel better eventually (even though for the moment they do not taste good). One day you will know that we had to mix in one of the medecines in your food, which is why sometimes you thought something tasted bad.
I hope in the end you will not remember too much of this time and leave these memories to us. Time to go now as you want something to eat (as usual).
Love
Your Dad
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