Well it's been a while since I wrote. Since we've come back home from the hospital, Rohan has been doing well. This second phase of treatment, Consolidation, is a bit easier. There are not as many medications at home and there are two weeks that we don't have to go to the hospital for chemo. But to ensure that we stay on our toes, Rohan's platelet count is quite high. Right now, there is nothing to do but monitor it. If it does get too high, though, there is the risk of blood clots. So if the counts get too high, they will prescribe that he take aspirin daily. Hopefully, this week's bloodwork will show that his platelets have gone down. It's amazing how many things the doctors keep in mind for each patient.
Otherwise, Rohan is doing fine. And so we are too. He is back to his cheerful and considerate self, and I'm glad to know that his despondent behavior was a temporary effect of the medication. We've been taking walks around the neigborhood and he is able to run quite a bit. I guess his energy is back up a bit. He does keep wondering why he has to continue taking medicine when he doesn't feel sick. We just keep reinforcing the message that the factory in his body that makes blood is broken in some places, and the medicine is fixing it. He doesn't really understand. But then neither do I...I don't understand why this had to happen to my vibrant boy.
Thanks to all of you for caring to read.
The Prologue
Since Rohan cannot explain what is happening to him, I have decided to start this blog as way to translate to all of you how he is feeling and doing throughout his treatment for leukemia. I also want it to be a kind of record for Rohan when he is older and able to read. With that said, there may at times be postings that might not make sense to you but will make sense to him later.I hope this blog helps all of you who care about Rohan and us better understand the journey. I already know it will help me to have more clarity while I make this journey with him.
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1 comment:
Hey Rupa,
I'm glad he is doing better. Hetal and I are hoping to swing by soon. The girls ask bout him as well.
See you soon,
Ananth
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