It's a Bumpy Ride

Luckily Rohan’s first month of treatment was unremarkable in that he did not get sick and need to be hospitalized. Unfortunately, that changed last week. On Thursday, he had a minor surgery to insert a more permanent port through which the doctors could draw blood and administer medication. The surgery went well, and we came home after having been at the hospital from six a.m. to 11:30 a.m. Two hours later we discover that Rohan has a fever. The doctor tells us we need to bring him to the hospital- so back we go again. And we end up having to stay there for at least five nights! His fever hovered between 102 and 104 for two days. The cause? A virus- most likely. “He has to be fever free for 24 hours before he can be released,” said the doctor. So we waited and prayed and entertained him and waited and prayed and entertained him.

We will most likely be home tomorrow, and Rohan will be better. Ravi and I will now be ever more vigilant in trying to minimize his exposure to any germs. It is a fine line between reasonable precaution and paranoid seclusion. I don’t think anyone would blame us right now if we lean toward the latter. It’s tough though. To tell your little boy that he can’t play with his friends or come to the grocery store with you or go out to eat or go to school is wrenching in its own way – even if you know it’s in his best interest.

Well folks, the journey continues…with all of its requisite ups and downs.